KLS - A parents guide

News Stories about Kleine Levin Syndrome

Along the journey of finding out more about KLS we have collected the following information from various newspapers, we have featured them together on this page as we have found them helpful and feel they are a great way to raise awareness of this condition:

KLS Story Jody gave birth in a KLS espisode and has missed lots of Christmas ActivititiesKleine Levin News Stories

Video Resources about Kleine Levin Syndrome

Below are some of the videos we have watched that are available around the world about Kleine Levin Syndrome - a great way to try and gain further understanding about the condition, and I have my own channel now on You tube too - KLS on You Tube.


Novel with main character having KLSSomething Different

I am adding a book recommendation .. it has been discussed in some of the KLS forum's that I am in and I thought I would like to share it with you.... If you are a member of a book club or like to read... can I suggest you pop over to Amazon and buy "Althea and Oliver" - http://amzn.to/1yHqLcL .

It is a novel about a boyfriend/girlfriend relationship .. it is by a new author.. but the twist is one of the characters has a very rare medical condition... if you read it you won't believe what this person does... but as a parent familiar with the condition... I can 100% relate ...

It does not hold any mircale answers... but it does raise the issue of Kleine Levin Syndrome in a different way... a way perhaps some people can relate too better.... and in places - well it is best to be broadminded... but I think that is always the case with KLS!

After finding out about the book I emailed the author - Cristina and asked her about her experience with KLS and told her about this site... this is her response.

Thank you for reaching out to me through my website. I apologize for the delay in my response, but things were extremely hectic around the time of the book's publication in October, and have only begin to settle down recently. 

In response to your question, no, neither I nor anyone I know has ever been diagnosed with KLS. I initially heard about it from a friend, many years ago, who had watched a news story about teenagers suffering from Kleine Levin Syndrome. Though I did a fair amount of research before writing Althea and Oliver, the novel is definitely not supposed to represent any kind of universal experience of KLS, and unfortunately the afflicted character does not necessarily find a resolution by the book's end. 

Thank you for sending me the link to your blog, which I found extremely compelling. I wish I had had access to such a personal account back when I was actually writing the book, it would have been very helpful. I hope you enjoy Althea and Oliver when you manage to get your hands on a copy, and I wish you and your family the best of luck as you continue your journey dealing with KLS. 

All best,
Cristina Moracho

Useful Web Sites

These web sites are the ones which we have found most useful in reading up about Kleine Levin Syndrome, or fighting for our child's future - so we have listed them here for reference.